Showing posts with label symptoms. Show all posts
Showing posts with label symptoms. Show all posts

Sunday, July 7, 2013

All My Symptoms

Keep in mind, I don't have all of these at one time.  I haven't actually experience ALL of these, but this is the most complete list I've found.  What I suffer from is highlighted.  The most annoying one right now is the burning skin on my arms that itches like crazy.  The intensity of the itch goes up with the heat index, the only remedy I've found is cool towels wrapped around my arms and a cold shower.

*** I copy pasted from the website and can't seem to get the blue blocking to GO away!

Fibromyalgia Symptoms


+ Indicates most prevalent in patients.

+ Brain Fog
trouble concentrating – can’t recall words (anomia) / names – using wrong word – memory lapses – lose track of present location – overwhelmed performing multiple tasks – low mental acuity – varies from day to day

+ Pain
usually both left and right side – in soft tissues – feels like “bones hurt” – generalized – radiating – gnawing – numbness, tingling, prickling, “pins and needles” – aching / burning in hands, arms, feet, legs, and sometimes face / jaw – some pain always present – firm touch can cause discomfort – worse in morning, improves throughout day, worsens at night – affected by activity level, weather, sleep patterns, stress, and foods – burning skin

+ Stiffness
worse on awakening and after sitting or standing in one position
muscle tightness / lack of flexibility, especially legs, back, shoulders

+ Fatigue
chronic – moderate / severe / extreme exhaustion – disabling – muscle twitching – muscle weakness – shakiness – long periods of sleeping – strong need to fall asleep / a quick nap often refreshes, but unrelenting fatigue returns

+ Exercise intolerance
too much or wrong exercise may worsen FMS symptoms

+ Emotional / Seritonin Reuptake 
“Seritonin Reuptake Cluster of Symptoms” :
anxiety / panic – depression – obsessive compulsive – procrastination.
Not all Fibros have these, but if have one of them, and it came with FMS, they usually have the cluster of all four. Caused by Seritonin Reuptake. Can be effectively treated by taking a good SSRI med – at night. (An over-the-counter alternative is 5HTP.)

+ Weakness
body wide – suddenly drop objects – clumsy hands – poor grip – extreme weakness all over

+Coordination impaired – can be in all areas – can’t pick feet up

+ Mobility
forward body posture / typing, desk sitting, assembly line work can cause chest and upper body (thoracic) pain / dysfunction. unable to move body if severe

+ Dysequilibrium / balance
tilting causes disorientation / nausea – dizziness – light-headedness – not able to adjust quickly

+ Tender Points
painful, sensitive locations on the body corresponding to branching of the arteries

+ Restless Leg Syndrome periodic limb movement disorder – during sleep or awake

+ Sleep
trouble falling asleep – waking at all hours – not rested when awake – easily awakened – abnormal sleep patterns

+ Sensitivity
over-sensitive to smell, noise, bright or flickering light – normal sounds can be excruciating
certain foods, medicines – change in weather – feeling cold or hot when others are not
“paresthesia” = abnormal neurological sensations
“hyperesthesia” = increased neurological sensations

+ Hair
thinning – dry – dull

+ Fingernails / toenails
soft and break – ridges

+Skin
itch – rash – small “ricelike” bumps – nicks bleed more easily – greasier skin -
deep painful blemishes on face, torso, arms and legs – nose tender / outbreaks on the sides sub-cutaneous, painful swelling that can’t open to surface. Blisters on scalp. Pilomotor phenomenon (goose bumps).

+Perspiration
insufficient is more common, but some FM’s sweat profusely

+ Hands / Feet
numbness, tingling – not flexible – palms and soles of feet blotchy – poor hand-eye – calluses and corns on feet more painful and irritating – dry – in severe FMS hands can lose all activity and turn back toward arms, palms first

+ Swelling
sensation of swelling (edema) in hands and feet – ankles – throughout body.  No swelling is actually present

+ Headaches
chronic – “ice pick” – muscular (tension) and severe migraine headaches – often from trapped HA in narrow passages in sinus. It swells, creating severe pressure.

+Eyes
problems with focus / skeletal tracking muscles of the eyes – “visual confusion” and nausea
vision not clear – like looking through Saran Wrap – frequent prescription changes – don’t sparkle
dry or burning

+Ears / Hearing
reduced acuity – feel stuffy – tinnitus (ringing or whining in ears) – waxier – may feel damp inside

+ Sinus
chronic problems – closed-up feeling in nose and sinuses – sinus infections – easily catch colds and flu – chronic runny nose – non-allergic rhinitis = nasal congestion / discharge and sinus pain – post nasal drip causes throat problems

+ Mouth
tongue sore / swollen tastebuds – tender gums / backside of lips and roof of mouth blistered – dry – white coat on tongue like soft sand grains as tastebuds shed abnormally – excess mucus – yellow scum on teeth

+Saliva
very acidic – pH test may show 4.0 before treatment. Ideal body pH is 7.40

+ Teeth
grinding and clinching during sleep – splitting /cracking – require caps

+TMJ – Temperomandibular Joint Dysfunction Syndrome

+ Weight gain
puffy all over – gain for no reason

Pelvic / Female Reproductive Problems 
Bladder Infection
Endometriosis – tissue resembling uterine mucous membrane occurs in pelvic cavity
Vulvadynia – unprovoked burning, stinging, irritation or rawness of the female genitalia
Infertility

Multiple Chemical Sensitivity Syndromes - metals, dyes, perfumes.

Friday, April 19, 2013

What It Feels Like

Going to preface this with....Not looking for sympathy here, not down about life, just trying to put into words how my world has changed.

Two and a half years ago, I was in a terrible mental state after months of not sleeping, anxiety and a depression that hit so hard I could not function.  I do not hide this, my journey thru that darkness is here on the blog.  All that therapy time with Anne brought my passions and life back into focus.  I could see the future clearly and what I wanted.

That battle was fought and won, then the carpet was pulled out again.  Emotionally, that is how I feel.  

Months of doctors throwing all these complicated diagnosis' and treatment protocol at me.  Me trying to absorb all the information and assimilate how it affects my life as a mom and wife.  I had JUST gotten my life back, my husband had just told a friend ''he'd hadn't seen me this happy in years.''

So I lost my marbles again, because my weakened brain couldn't handle the anxiety and stress.

Most mothers will agree, we envision moments with our children in the future.  The day Nora marries is a hazy picture already forming in my brain.  What she will look like, what I will say, the tears of happiness we will cry.  I can see Trent chatting it up with his father on the back porch like two good friends.  My love for these two is held tightly at the center of my soul.

As a mom you want to do EVERYTHING with your kids. Go, go, go!  Daily adventures to stores, playgrounds, museums, art groups, music, ballet, the beach, etc.

Inside of four months last summer, all of that was changed.  So how do you adjust as a mom?

Well, first you get ticked off!  How do you accept limitations on your life because your body is attacking itself?  Most people get pissed, I know I did.

You slow down, take a step back.  Then you go talk to Anne again.

When I talked to Anne this past fall, our focus was on redefining my roll as mom and what that meant with a chronic illness.  My expectations are and were very high, we had to reset that bar.  First she had to help me process all the changes that were being asked of me....I entered a very recognizable cycle of grief.

Denial.  ''I'm fine.  They have meds for things like this.''

Anger.  Pissed. pissed. pissed.  Don't tell me I CAN'T, I will!  How dare this happen! Let's just say, God and a lot of people came under fire.

Bargaining.  Played a lot of 'IF this...then that'' statements with myself.  If this can just be something that doesn't confine me to a wheelchair, I'll be good with that.  God, you hear me....anything where I still walk, and talk, and paint, and sew, and think, and, and, and....oh, I can't have all of that.

Depression:  Enough said.

Acceptance:  So life is going to look different.  What's the plan?

With every new symptom comes challenge, how does that change my day, how do I work around that or compensate.  What I learned from Anne, with a chronic condition you will go thru the grief cycle over and over and over again as the disease progresses.  There will people that readily accept your illness, those that deny it because they themselves are scared.  Let them be scared, you keep marching forward until they find you again.

Don't every let go of family and friends, you will need them.

The bad days can be, well, bad.  Joints feeling like they will explode, muscle spasms that feel like 9-volt batteries zapping me, stumbling over simple vocabulary and ideas, fatigue and dizzy spells.  My basic BAD day.

On these days, I had to learn to do the minimum so I could do the maximum with the kids.  This might not make sense to some of you.  What is the activity that makes me use the minimum amount of energy or muscle that still gives them the best of me?   I don't like telling my kids, ''mommy can't''.  This disease will not be my excuse.

Bad days. Lay in the yard and blow bubbles. Snuggle the kids in for a book.  Pull something from the freezer for dinner.  Have Nora paint my toes.   Play 'patient' with the kids.  Be a bumpy road for Trent's cars.  Read a book for myself.  Skip a play date.

Good days.  Most days are good days.  Feel the sun on my face. Park with the kids. Go to the YMCA. Make a culinary mess of the kitchen. Fly kiddos on my feet. Play monster. Cover the patio with chalk drawings. Put the kids to bed.

Both days end snuggled up to the hubby, both days are good days sung to a different tune.


Wednesday, June 6, 2012

These Hands

Lately, I've been thinking a lot about the scene in Neverending Story when the big rock creature starts talking....''these hands, these hands, used to be so strong.''  He has this confusion about how they could have failed him.

I understand this.

For a couple years now, I've noticed a clumsiness when grabbing things.  Either I miss judge a distance and end up knocking things over or I go to put something down my hands seem to let go before I want to.  Many, many cups of coffee have been spilled and/or broken in this way.  I always credited it with sleep deprivation after having Trent almost two years ago, but that's not such an issue these days.

Then came me being tired every afternoon,  no matter how much sleep I get.

After that was the depression and anxiety of last year which came out of no where.

And now,  there is a weakness in my legs and arms.  I can only describe it as the feeling after a really big workout when muscle fatigue has set in.  If I vacuum, my biceps feel it, if I go up the stairs my thighs and calves are aching at the top.

Something is definitely going on.  We have multiple sclerosis(MS) on both sides of the family so if I were a betting person that is where I'd place my money.

Oddly, we are calm about this.