And another Theory

UGH!!!!!

This diagnosis process is so frustrating and emotionally taxing.  We are now start month 5, yes, month 5 of tests and doctors and blood.

The Rheumo was more personable yesterday, so that was a saving grace for me.  He says all my Lupus numbers are borderline positive so we need to 'wait and see'.  Ok, I can do that.  I was also told that my uric acid is double the normal level, so the Gout that runs in my family is headed my way.  Just one more health similarity I have to my dad.

So now, it's on to the Hematologist next week.  When I explained the order to start taking baby aspirin daily to the Rheumo and spots on my brain he said, ''oh, positive lupus anti-coagulant tests, vasculitis. hmmmmm.''   Lupus anti-coagulant is NOT lupus, just a misnamed blood disorder.  The vasculitis refers to the hyperintensities on my brain MRI, where blood flow has been cut off and caused the little dead spots of tissue.

The sticky blood problem I might have comes under a couple names.  APS/Hughes Syndrome and is only recently discovered in the early 80's.  It comes with whole host of potential health problem, but there is treatment.  Oddly, it can mimic MS so they have found many patients misdiagnosed with MS with actual Hughes Syndrome.

Many of my symptoms line up with this problem, so maybe we've found the next theory.  I just want an answer, want to know what I'm fighting so I can move forward!  The emotional limbo is torture, more so than any problem I'm having.